Hunter’s Dream for a Cure
Please join the Russell Outdoors family in hunting down a cure to end a childhood neurological disease known as Sturge-Weber Syndrome (SWS). We support the efforts of the Hunter’s Dream for a Cure Organization through their annual Celebrity Hunt for a Cure event. Please make sure to visit Huntersdream.org for more information about the foundation and the Celebrity Hunt for a Cure event.
Hunter’s Dream for a Cure is a non-profit organization established in 2000 by Robb &Wendy Nelson in the name of their son, Hunter, who was diagnosed with Sturge-Weber Syndrome (SWS) when he was seven months old.
On May 29th, 2005 we unexpectedly lost Hunter to a massive seizure. Needless to say this has been a monumental &devastating loss. In Hunter’s memory our foundation has made a renewed commitment to fight this disease and try to make sure that other families do not have to go through the ultimate tragedy of losing a child! SWS is a rare brain disease with no cure or definitive prognosis for those afflicted with it. Symptoms associated with SWS include seizures, glaucoma, cognitive, motor and neurological deficits, eye and internal organ irregularities. Hunter’s Dream raises money for children with SWS, other neurological diseases and programs for special needs children right here in Colorado.
Through our fundraising events, the Dave Diaz-Infante Mark Schlereth Charity Golf Classic, the Celebrity Hunt for a Cure and the Craig Morgan Denim &Diamonds Gala, we have raised more than $900,000 since our inception. Our efforts were recognized in 2004 when we received the Frances Owens Communities Helping Young Children Award presented by the former First Lady of Colorado for demonstrating outstanding support for early childhood intervention and support programs in Colorado. In 2005 Robb &Wendy received the Pathways Achievement Award from the state of Colorado, honoring extraordinary achievements for people with disabilities.
Hunter’s Dream for a Cure has presented The Kennedy Krieger Institute &Johns Hopkins Sturge-Weber Syndrome Center with checks to date totaling $525,000. Our funding helped establish the Center, which was the first of its kind. As a result of our funding and Hunter’s passing, the Center was renamed the Hunter Nelson Sturge-Weber Center. The Center takes a multi-disciplinary approach to evaluating and treating all medical issues associated with SWS. Long-term research goals of the Center include the development of clinical trials aimed at improved treatment for those affected by SWS and hopefully an eventual cure.
For more information or to dontate, please visit: www.huntersdream.org
